Meet Malone! šŸ‘

Say hellošŸ‘ to our patcher of the week,Ā Malone! 🤩


Malone was born with PFV, a unilateral congenitalĀ cataract, and optic nerve coloboma in her left eye. AĀ one in ten thousand diagnosis.

In Malone's mum's own words, "So essentially MaloneĀ was born unable to see out of her left eye due to anĀ opacity of her natural lens. And to top it off, sheĀ developed an abnormal optic nerve. Fuck.Ā The prognosis for this combo is poor. Surgically, theĀ lens can be removed and an artificial one placed.

Patching can help force the brain to use that eye.Ā However, with an optic nerve coloboma, there are noĀ guarantees any of the images she sees will actuallyĀ make it to her brain, thus rendering the eye useless.Ā Welp, we either sink or swim (tbh, I’d rather float butĀ whatever). So we begin her lifelong journey to try toĀ gain some vision in her left eye.Ā She will never be ā€œcuredā€, she won’t ā€œrecoverā€. It’sĀ something she will deal with for the rest of her life. ButĀ her life will still be good. Damn good šŸ’ŖšŸ¼. Even if sheĀ ends up a one-eyed babe 😜! "

We love the dedication Malone and her family haveĀ shown towards improving Malone's Vision šŸ˜, and theĀ Ophthalmologist is already blown away with theĀ progress! Malone is currently 2 years old and patchesĀ everyday for 6 hours and we hope with her future visionĀ check-ups this will be reduced as her vision improves.Ā We are cheering you on Malone and so happy to be onĀ this journey with you. Follow along Malone's specialĀ journey @eyemnotalone Thank you to her Mum forĀ letting us share her special story and to help spreadĀ further awareness šŸ™šŸ¼āœØ